Neurological Disorders: Perceived Causes, Effects and Coping Strategies among caregivers in Lagos, Nigeria.
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Date
2023
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Journal of Social Issues in Non-Communicable Conditions & Disability
Abstract
Despite high prevalence of neurological disorders among African children, efforts to highlight caregivers' lived experiences remain under-explored. This study investigates the perceived causes, impacts, and coping strategies among caregivers of children with paediatric neurological conditions (cerebral palsy, hydrocephalus, jaundice, down syndrome, autism and epilepsy) in Lagos, Nigeria. The study utilizes a phenomenological research method to capture the experiences of caregivers and acquire insights into their shifting attitudes. A semi-structured in-depth interview guide was used to conduct face-to-face interviews with 21 caregivers in two facilities that provide care and treatment for children with neurological diseases. Three themes emerged from the thematic analysis. The study found that caregivers attributed neurological impairment to medical difficulties during pregnancy, labour, and delivery as well as the general attitude of medical personnel. The effects of caregiving on caregivers included frustration, conflicts, financial stress, mental and emotional strain, impacts on work schedule and family time. To deal with these issues, caregivers were able to cope with assistance from significant others and personal sacrifices by selling personal belongings to meet the financial demand of caring for children with neurological disorder. The study recommends the development of interventions and policies that can alleviate the burden on caregivers and improve the overall well-being of children with neurological disorders and their families.
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Adejoh S. O., Adebayo K., Wellington, O., Osazuwa P., Olorunlana, A., Okoye, O. C., Tade, I. & Bakare, M. A. (2023). Neurological Disorders: Perceived Causes, Effects and Coping Strategies among caregivers in Lagos, Nigeria. Journal of Social Issues in Non-Communicable Conditions & Disability, 2(1), 119-132